This is where we will publish information leaflets for the wider Duchenne community - including patients, families, schools, and primary health care providers.
You can view and download the first two DMD Care UK Information Leaflets below.
This leaflet will help you to understand how long term use of steroid in Duchenne muscular dystrophy can affect the adrenal glands, and how this can be managed.
Please click on the leaflet to view it.
Click here to order your Steroid Dependent Wristband.
This webinar was about the UK recommended steroid stress dosing plans. There was also a demonstration of the hydrocortisone kit and the steps to giving an injection.
Watch our webinar with experts from the Adrenal Insufficiency, Bone & Puberty working groups explaining the care recommendations from the newly published leaflets.