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About DMD Care UK

DMD Care UK is a nationwide initiative to ensure every person living with Duchenne muscular dystrophy (DMD) in the UK has access to the best care, no matter where they live.


We're bringing together expert clinicians and the patient community to agree, communicate and implement DMD standards of care recommendations for the UK. These are based on the international recommendations published in The Lancet Neurology in 2018, but are more specific and adapted for the UK.


Who's involved in DMD Care UK?

DMD Care UK is a collaborative initiative between the John Walton Muscular Dystrophy Research Centre at Newcastle University and Duchenne UK, embedded in the UK North Star Network. It is funded by Duchenne UK, Duchenne Research Fund and Joining Jack.

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