About DMD Care UK

DMD Care UK is a new nationwide initiative to ensure every person living with Duchenne in the UK has access to the best care.

DMD Care UK is funded by Duchenne UK and Joining Jack. They are working closely with the John Walton Muscular Dystrophy Research Centre in Newcastle and in collaboration with the North Star Network, funded by MDUK.

The project will work with expert clinicians and the patient community to agree, communicate and implement DMD standards of care recommendations for the UK. These will be based on the international recommendations published in The Lancet Neurology in 2018.

We will work together to make sure that every person living with Duchenne muscular dystrophy in the UK has access to the best care. No matter where they live.

We will be publishing updates and developing this website over the coming weeks and months.

Meanwhile, you can watch the launch video above, read Duchenne UK's press release, and view the first of our Patient Information Leaflets.

For more information, contact the DMD Care UK Project Manager, Cathy Turner: catherine.turner@ncl.ac.uk