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    • About
      • Working groups
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      • Clinical Recommendations
      • Events & training
    • For patients and families
      • Information and guidance
      • Emergency support
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  • Home
  • About
    • Working groups
  • For clinicians
    • Clinical Recommendations
    • Events & training
  • For patients and families
    • Information and guidance
    • Emergency support
  • News

About DMD Care UK

DMD Care UK is a nationwide initiative to ensure every person living with Duchenne muscular dystrophy (DMD) in the UK has access to the best care, no matter where they live.


We're bringing together expert clinicians and the patient community to agree, communicate and implement DMD standards of care recommendations for the UK. These are based on the international recommendations published in The Lancet Neurology in 2018, but are more specific and adapted for the UK.


Who's involved in DMD Care UK?

 DMD Care UK is a Duchenne UK initiative, co-funded by Joining Jack and Duchenne Research Fund. They are working closely with the John Walton Muscular Dystrophy Research Centre in Newcastle and in collaboration with the North Star Network, funded by MDUK. 

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Registered Charity No. 1147094.

DMD Care UK - a Duchenne UK collaboration

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