DMD Care UK is a new nationwide initiative to ensure every person living with Duchenne muscular dystrophy (DMD) in the UK has access to the best care, no matter where they live.
DMD Care UK is funded by Duchenne UK, Joining Jack and Duchenne Research Fund. They are working closely with the John Walton Muscular Dystrophy Research Centre in Newcastle and in collaboration with the North Star Network, funded by MDUK.
The project brings together expert clinicians and the patient community through working groups to agree, communicate and implement DMD standards of care recommendations for the UK. These are based on the international recommendations published in The Lancet Neurology in 2018.
The recommendations from each working group will be published on this website as they are agreed. We will also produce information resources and educational opportunities for patients and their families, clinicians, schools and the community.
For more information, contact the DMD Care UK Project Manager, Cathy Turner: email@example.com.
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