Guidance for DMD patients and families

Standards of care affect the length and quality of life for people living with Duchenne muscular dystrophy (DMD). DMD patients, caregivers and families should be informed and involved in their own care and treatment, and work together with healthcare professionals for the best outcomes.

Download the booklets below and watch our webinars for more information on the recommended standards of care. If you'd like to be involved in reviewing future resources, express an interest in becoming a DMD Care UK patient representative.

For more information and support for families, visit Duchenne UK's website.

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DMD patient information guides

The booklets below are based on DMD Care UK's clinical recommendations for different areas of care. They are designed to help DMD parents, families and patients understand the care they should receive.