DMD Care UK will provide education and training opportunities for healthcare professionals and families to raise awareness of the care recommendations for Duchenne muscular dystrophy.
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Representatives from each DMD Care UK working group presented their progress so far and priorities for their area of care in Leeds on 10 January 2023. Watch the recordings from the meeting below.
Professor Volker Straub and parent representative and SEND expert Dr Janet Hoskin present from the psychosocial working group
Consultant neurologist Dr Michela Guglieri presents from the spinal working group