DMD Care UK will provide education and training opportunities for healthcare professionals and families to raise awareness of the care recommendations for Duchenne muscular dystrophy.
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Representatives from each DMD Care UK working group presented their progress so far and priorities for their area of care in Leeds on 10 January 2023. Watch the recordings from the meeting below.
Consultant cardiologist Dr John Bourke and parent representative Lusa Kuhwald present from the cardiac care working group
Parent representative Alex Johnson and consultant paediatric endocrinologist Dr Jarod Wong present from the bone and endocrine working group
Consultant paediatric neurologist Dr Anne-Marie Childs and parent representative Phillippa Farrant present from the respiratory working group
Professor Volker Straub and parent representative and SEND expert Dr Janet Hoskin present from the psychosocial working group
Consultant neurologist Dr Michela Guglieri presents from the spinal working group
Consultant research physiotherapy Anne Mayhew and parent representative Sejal Thakrar present from the physiotherapy workingr group
Consultant neurologist Dr Vasantha Gowda and parent representative Nick Catlin present from the emergency working group
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