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Events and training on Duchenne muscular dystrophy care

DMD Care UK will provide education and training opportunities for healthcare professionals and families to raise awareness of the care recommendations for Duchenne muscular dystrophy.  


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Standard of care update meeting - 10 January 2023

Representatives from each DMD Care UK working group presented their progress so far and priorities for their area of care in Leeds on 10 January 2023. Watch the recordings from the meeting below. 

Cardiac working group

Consultant cardiologist Dr John Bourke and parent representative Lusa Kuhwald present from the cardiac care working group


Download the Q&A

Bone & endocrine working group

Parent representative Alex Johnson and consultant paediatric endocrinologist Dr Jarod Wong present from the bone and endocrine working group


Download the Q&A

Respiratory working group

Consultant paediatric neurologist Dr Anne-Marie Childs and parent representative Phillippa Farrant present from the respiratory working group


Download the Q&A

Psychosocial working group

Professor Volker Straub and parent representative and SEND expert Dr Janet Hoskin present from the psychosocial working group

Spinal working group

Consultant neurologist Dr Michela Guglieri presents from the spinal working group

Nutrition working group

Dr Jarod Wong presents from the nutrition working group


Download the Q&A

Physiotherapy working group

Consultant research physiotherapy Anne Mayhew and parent representative Sejal Thakrar present from the physiotherapy workingr group


Download the Q&A

Emergency working group

Consultant neurologist Dr Vasantha Gowda and parent representative Nick Catlin present from the emergency working group


Download the Q&A

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