The clinical recommendations are evidence-based and consensus-based guidelines for Duchenne muscular dystrophy (DMD) patient care in the UK, agreed by each DMD Care UK working group.
All recommendations have been based on the International DMD Care Considerations 2018 published in the Lancet Neurology: Part 1, Part 2 and Part 3 but are more specific and relevant for the UK healthcare system.
We also offer accessible versions of the recommendations for patients and families . Please fill out this form to order printed copies for your care centre.
These recommendations were drafted by the Bone and Endocrine working group of the DMD Care UK project. They have been agreed through consultation and input from North Star specialists from across the UK network, members of the British Paediatric and Adolescent Bone Group and have been endorsed by the British Society for Paediatric Endocrinology and Diabetes (BSPED).
This group will use and share these recommendations in future academic publications.
This work is published under a Creative Commons Attribution-Noncommercial-NoDerivatives 4.0 International License http://creativecommons.org/licenses/by-nc-nd/4.0/
These recommendations were drafted by the cardiology working group of the DMD Care UK project. They have been agreed through consultation and input from North Star specialists from across the UK network and DMD patient and caregiver representatives, and have been endorsed by the British Cardiovascular Society. The recommendations were published in the BMJ Open Heart in October 2022.
Read the recommendations in the BMJ Open Heart or download a PDF copy below.