These wristbands are designed to be worn by people with DMD who take corticosteroids (or steroids). They alert first responders and medical professionals that the wearer is steroid dependent and may need to be given steroids if they are unwell or injured. Find out more about why this is important in our adrenal insufficiency leaflet.
The Duchenne UK In Case of Emergency (ICE) app allows you to keep a profile of your/your child’s medical needs and emergency contacts, as well as general guidance on treating DMD patients. This can be quickly sent to medical staff as a PDF document.
We advise you to update the app regularly and print a copy of the PDF from the app to share with your child’s school and other caregivers, so that they can share this with medical professionals in the event of an emergency.
Current issues with App
We are aware that there are some problems with the DMD Emergency Care App at the moment and are working hard to fix this.
Where you can find information for dealing with emergencies
We know how useful the App has been when it is functioning correctly. It’s really important that families living with Duchenne have reliable access to vital information in an emergency situation.
Because of this, we advise you to use the online Emergency Pack or show it to medical professionals treating you or the person you care for, until the problems are fixed.
You can find that here.
Fixing and updating App
Meanwhile, we are working on an upgrade to the App which will fix the current problems and also deliver some of the new features you told us about in feedback. We look forward to an announcement later this summer to relaunch an upgraded version of this important tool.
Thank you so much for your patience and many apologies for this pause in the App.